This page provides information on research studies in which families with Autism Spectrum Disorder (ASD) might be interested in participating.

DISCLAIMER: These studies are being conducted by 3rd parties not affiliated with Autism Services.

(i.e., methods and strategies presented in the studies may differ compared to what is offered at Autism Services)

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STUDY: Assessment on Autism

(posted August 3, 2021)

This research initiative seeks to hear directly from Autistic people, their family members and those who work with them about the main supports they require so the government and policy makers know where to focus their efforts and investments.

Study Overview:

The research is being conducted on behalf of the Canadian Academy of Health Sciences (CAHS), who have been tasked by the Public Health Agency of Canada (PHAC) to deliver an Assessment on Autism. This assessment will provide that government with a series of recommendations that will inform a National Autism Strategy. The following survey is part of a broader consultation that includes other forms of public engagement, as well as an extensive evidence review.

For more information about the Assessment on Autism, please visit: https://cahs-acss.ca/autism-assessment

Your voice, through this survey, is critical to ensuring that Autistic individuals and those who support them are part of a conversation that will influence the federal government’s strategy.

What You’ll Receive:

Participants who qualify and complete the survey will have the option to receive an honorarium of $25 as a token of our appreciation, delivered through e-Transfer upon completion of the survey and review of the data. Please note that in order to receive your e-Transfer you will need to provide us your details at the end of the survey. All data will be reviewed prior to delivering the honorarium to ensure your responses and information is accurate to avoid fraud.

How to Participate and for more information:

Click the link, which will direct you to the online survey homepage (the survey should take approximately 10 minutes of your time):  https://survey.environics.ca/autism-10964-2/

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STUDY: Social Inclusion Among Individuals with ASD: How to advance their resilience

(posted April 5, 2021)

This study is being conducted by the Occupational Therapy Department, Dalhousie University.

From the research team:

We are researchers at Dalhousie University conducting a study to investigate the perception and experiences of individuals with autism spectrum disorders (ASD), their parents, and clinicians about resiliency and coping strategies.

This project aims to explore resilience and stress from the perspectives of individuals with ASD, their parents, and health care providers. In doing so, we strive to gain a better understanding of ways to improve services to support this population.

We are looking to recruit verbal individuals with ASD, parents of individuals with ASD, and healthcare providers in the field of ASD.  If you are interested in participating in this research study, the following information and attachments will provide you with more information.

Participation

Participation in this project will entail attending an interview in which you will be asked to share your insights on the available services or resources. Due to COVID-19, interviews will take place remotely over Skype or the phone based on your personal preference. This study will take about 60 minutes to complete at the preferred location or virtually via Skype or over phone. You have the option to withdraw from the study at any point.

By participating in this interview, you will be given a gift card (e.g., Amazon), valued at $30.

If you are interested to participate in this study or have any questions, please contact the research team via email at resource@dal.ca.

Thank you so much for your time and support!

Sincerely,

Autism Research Team, Occupational Therapy department, Dalhousie University

Click this link for their invitation letter with additional information.

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STUDY: The Lived Experience of Parental Stress for Fathers of a Child with Autism Spectrum Disorder

(posted March 4, 2021)

This study is being conducted by the Department of Graduate Studies, University of Regina.

For more information about this study, or to volunteer for this study, please contact:

Cody MacSorley, BSW, RSW at macsorco@uregina.ca

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STUDY: Free Online Treatment for Anxiety in Children with ASD

Are you a parent of a child with autism between 7-14 years of age? Does your child also struggle with anxiety? They are looking for parents who are interested in delivering, with the support of a coach, an online intervention program to their child with anxiety. You are invited to complete a confidential, online questionnaire to find out if this program is appropriate for you and your child. The questionnaire will take approximately 15 minutes. This research project is Sarah Elizabeth Ivens’ PhD dissertation and is being supervised by Dr. Lynn Loutzenhiser.

To complete the questionnaire, please visit http://uregina.ca/~loutzlyn/Research.html

This project has been approved on ethical grounds by the Research Ethics Board of the University of Regina.

For more information, please feel free to contact Sarah Ivens at ivens20s@uregina.ca

Sarah Elizabeth Ivens
Child and Family Research Group
University of Regina
http://uregina.ca/~loutzlyn/
306-585-2592

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STUDY: Investigating Depressive Symptomatology in Adolescents with ASD and ADHD

This online study is looking at the emotional life of adolescents with ASD, ADHD or neurotypical controls. Participants and their caregiver will complete a few questionnaires. Both the caregiver and the adolescent will receive a $10 Amazon E-Gift card for their time. The present study will take approximately 1.5 hours to complete. They are looking for individuals between the ages of 12-18. If you are interested in participating, please contact them through email or phone for more information.
Phone: 613-533-2894

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STUDY: Chatbot Engagement Focus Group

This study is conducted in partnership with CASDA (Canadian Autism Spectrum Disorders Alliance), WCHRI (Women and Children’s Health Research Institute), and KBHN (Kids Brain Health Network). They are currently in the process of running online focus groups that will inform the development and use of engagement tools in a proposed Chatbot. The Chatbot aims to improve the life outcomes of families affected by Neurodevelopmental Disorders.  See the poster below for more details.

If you have any questions or would like to participate in this focus group, please direct your inquiries to the study coordinator at University of Alberta by email at camibot@ualberta.ca or phone (780) 492-7034.

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STUDY: Life Beyond Trauma – a research program for parents of neurodiverse children

This study is led by Dr. Patrick McGrath and Dr. Elisa Kaltenbach, Centre for Research in Family Health, IWK Health Centre.

This new research project about traumatic experiences and Post Traumatic Stress Injury in parents of neurodiverse children starts now.

Facts about the survey:

  • For all parents and caregivers of neurodiverse children (all ages)
  • About parents’ experiences and access to care
  • Takes approx. 30 min
  • Highly confidential
  • Chance to win $100 gift card

Facts about the trauma-focused e-health program:

  • Based on the Narrative Exposure Therapy (NET)
  • 12 one-on-one sessions with a trained coach
  • Delivered via video calls
  • Free of cost

About the researchers: They are a research team at the Centre for Research in Family Health, IWK Health Centre, Halifax. The principal investigator is Dr. Patrick McGrath; the project coordinator is Dr. Elisa Kaltenbach. The research project has been approved by the Research Ethics Board of the IWK Health Centre.

For more information on the research project, click here: www.lifebeyondtrauma.cahttps://lifebeyondtrauma.ca/

To join and learn more about the research project, contact the researchers at lifebeyondtrauma@iwk.nshealth.ca or 1-877-341-8309 ext. 7 (toll free)

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STUDY: Parents Empowering Neurodiverse Kids

This study is led by Dr. Patrick McGrath, IWK Health Centre and Dr. Lucyna Lach at McGill University.

Neuro-poster

About the study

We are offering Canadian parents of children with Neurodevelopmental disabilities an opportunity to participate in research. We offer a chance to try out a new parenting program aimed to help parents better manage challenging behavior in their children.

Who Are We Looking For?

We are seeking parents of children with intellectual disability, Autism Spectrum Disorder (ASD), Cerebral Palsy (CP), Epilepsy, Global Developmental Delay, Down Syndrome, Fetal Alcohol Spectrum Disorder (FASD), severe learning disability and other neuro-developmental disabilities to take part in a study run by the Centre for Research in Family Health at the IWK Health Centre.

Children must be ages 3-14 and have an official diagnosis of a neurodevelopmental disability. You must live in Canada to take part in this study.

For Your Time

Participating and eligible families will receive up to an $150 honorarium (cheque or gift card) in $50 installments as they complete the three study questionnaire sets.

In addition to the honorarium, eligible families may receive free coaching to help with their child’s challenging behaviours.

The Strongest Families Neurodevelopmental Program

The Strongest Families Neurodevelopmental Program has been developed to deliver evidence-based care to families in the comfort of their own homes. Our program includes 11 skill-based education sessions, weekly telephone support from trained coaches, video/audio skill demonstrations, and a Parent-to-Parent online support group. Eligible study participants will have access to some or all of these components, either during or after the study, and will be asked to provide their feedback.

The creation of our program has involved parents of children with neurodevelopmental disabilities as expert advisors in all phases of the project, ensuring program content is relevant to families like their own.

This study is led by Dr. Patrick McGrath, IWK Health Centre and Dr. Lucyna Lach at McGill University. It has received ethics approval by the IWK research ethics board.

For more information on the study, click here: Neuro-Study_PDF

Visit to join and learn more about the study:

https://mystudies.ca/studies/neuro…

To learn more about the Strongest Families Institute, visit:
http://strongestfamilies.com/about-us/