While there is no one known cause for autism, it is known the disorder is not caused by poor parenting.
This page provides information on research studies in which families with Autism Spectrum Disorder (ASD) might be interested in participating.
DISCLAIMER: These studies are being conducted by 3rd parties not affiliated with Autism Services.
(i.e., methods and strategies presented in the studies may differ compared to what is offered at Autism Services)
PILOT STUDY: Youth and Young Adults Needed for Holland Bloorview Kids Rehabilitation Hospital Pilot Study
(posted October 28, 2022)
Are you a Canadian youth or young adult who has work experience or is looking for work? Consider participating in a pilot study to evaluate a workplace disability disclosure decision-aid tool. To learn more about this study and to determine if you are eligible, please download the recruitment flyer attached to this email or click the following link: https://redcap.link/decisionaidtool-pilotstudy
To ask questions or to sign up, please contact me at email@example.com.
RESEARCH STUDY: ASD, MUSIC & VIDEOGAMES
(posted September 12, 2022)
RESEARCH STUDY: Codesigning and evaluating the usability of a workplace disclosure tool for Canadian youth and young adults on the autism spectrum
(posted April 29, 2022)
Are you a Canadian youth or young adult on the autism spectrum who is looking for paid work or has work experience? You may be eligible to participate in our new research study to codesign and provide feedback on a prototype of an online autism disclosure decision-aid guide and planning tool! Learn how, here: https://redcap.link/codesignusability-readonlyICF or contact firstname.lastname@example.org
STUDY: Everyday Experiences and Communication
(posted February 10, 2022)
Researcher: Kara Hannah, the McRae Cognitive Science Lab, and the Sensory Perception Research Lab at Western University in Ontario, Canada; email@example.com
We are interested in what people know about common events and how people communicate. We are looking for autistic and non-autistic individuals (aged 9 and up) to participate in an online study.
Who can participate?
- Adults (18 and older) who are autistic or non-autistic, OR
- Children (aged 9-17) who are autistic or non-autistic, and their parents/guardians
Participants must be English speakers.
What is involved?
The study has three parts that can be done at different times:
- Filling out personality/behaviour questionnaires. (For children under 18, this would be completed by a parent or guardian.)
- Completing a task about ordering the steps people do during common events (like going to the movies).
- Having a Zoom call for language and knowledge tasks with the researcher. Participants will answer questions about words, sentences, and pictures.
A device with a reliable internet connection would be needed for the study. In total, the study may take up to 3 hours.
Will I be compensated?
In total, you would be given $30 CAD for participating in the study.
Who do I contact?
If you (or your child) want to participate or have questions, please email Kara at firstname.lastname@example.org.
Kara Hannah, the McRae Cognitive Science Lab, and the Sensory Perception Research Lab at Western University in Ontario, Canada
STUDY: Autism Interventions and Quality of Life
(posted December 16, 2021)
Researcher: Taline Movsessian, MSc., MBA, Doctoral Student, Walden University; email: email@example.com
You are invited to participate in a study survey if you meet the following criteria:
- adult with autism ages 18 years and older without intellectual disability; OR
- parent/caregiver of the above individual
See below for additional information.
Use this link to access the survey: https://www.surveymonkey.com/r/Autsurvey
(IRB approval #11-05-21-0981565)
STUDY: Emoji Study (REB ID: Pro00114147)
(posted October 30, 2021)
Principle Research Investigator: Jacqueline Cummine, University of Alberta, Department of Communication Sciences & Disorders; email: firstname.lastname@example.org.
About the study:
The University of Alberta (REB ID: Pro00114147) has released on online survey for adults 18+.
We are gathering information on the frequency of use of emojis and short-hand text, in addition
to personal confidence in these forms of communication, among typically developing adults and
individuals with reading impairment, and autism. This English survey should take less than 30
minutes to complete. If you are interested in participating, please access the survey here:
If you have any questions or concerns about any aspect of this study, you may contact either the
investigator at the contact information provided or the University of Alberta Ethics Office at
STUDY: The Views of First Nations Caregivers on Neurodevelopmental Disabilities in Canada
(posted September 29, 2021)
About Principle Researcher: Cosmin G. Coltea lives in Saskatchewan and is enrolled in a doctorate in Psychology with California Southern University. If you would like to participate please contact Cosmin by text/call at (306) 314-1909, or e-mail at email@example.com.
About the study:
This is an opportunity for Saskatchewan First Nations caregivers to talk about their experience of raising a child with neurodevelopmental delays/disorders (autism, ADHD, intellectual/learning delays and disabilities, behavior concerns, language delays, etc). This study was approved by the California Southern University Institutional Review Board (IRB).
Who are we looking for: First Nations caregivers 18 years of age or older, having one or more school-aged children with neurodevelopmental disorders or delays. The time commitment for this study is approximately one hour. The interviews, recorded for sound, will be conducted in person at a location convenient to the participants.
Compensation: Each participant will receive a pre-paid Visa card of $25.
See below for the study recruitment letter:
STUDY: Assessment on Autism
(posted August 3, 2021)
This research initiative seeks to hear directly from Autistic people, their family members and those who work with them about the main supports they require so the government and policy makers know where to focus their efforts and investments.
The research is being conducted on behalf of the Canadian Academy of Health Sciences (CAHS), who have been tasked by the Public Health Agency of Canada (PHAC) to deliver an Assessment on Autism. This assessment will provide that government with a series of recommendations that will inform a National Autism Strategy. The following survey is part of a broader consultation that includes other forms of public engagement, as well as an extensive evidence review.
For more information about the Assessment on Autism, please visit: https://cahs-acss.ca/autism-assessment
Your voice, through this survey, is critical to ensuring that Autistic individuals and those who support them are part of a conversation that will influence the federal government’s strategy.
What You’ll Receive:
Participants who qualify and complete the survey will have the option to receive an honorarium of $25 as a token of our appreciation, delivered through e-Transfer upon completion of the survey and review of the data. Please note that in order to receive your e-Transfer you will need to provide us your details at the end of the survey. All data will be reviewed prior to delivering the honorarium to ensure your responses and information is accurate to avoid fraud.
How to Participate and for more information:
Click the link, which will direct you to the online survey homepage (the survey should take approximately 10 minutes of your time): https://survey.environics.ca/autism-10964-2/
STUDY: Social Inclusion Among Individuals with ASD: How to advance their resilience
(posted April 5, 2021)
This study is being conducted by the Occupational Therapy Department, Dalhousie University.
From the research team:
We are researchers at Dalhousie University conducting a study to investigate the perception and experiences of individuals with autism spectrum disorders (ASD), their parents, and clinicians about resiliency and coping strategies.
This project aims to explore resilience and stress from the perspectives of individuals with ASD, their parents, and health care providers. In doing so, we strive to gain a better understanding of ways to improve services to support this population.
We are looking to recruit verbal individuals with ASD, parents of individuals with ASD, and healthcare providers in the field of ASD. If you are interested in participating in this research study, the following information and attachments will provide you with more information.
Participation in this project will entail attending an interview in which you will be asked to share your insights on the available services or resources. Due to COVID-19, interviews will take place remotely over Skype or the phone based on your personal preference. This study will take about 60 minutes to complete at the preferred location or virtually via Skype or over phone. You have the option to withdraw from the study at any point.
By participating in this interview, you will be given a gift card (e.g., Amazon), valued at $30.
If you are interested to participate in this study or have any questions, please contact the research team via email at firstname.lastname@example.org.
Thank you so much for your time and support!
Autism Research Team, Occupational Therapy department, Dalhousie University
STUDY: The Lived Experience of Parental Stress for Fathers of a Child with Autism Spectrum Disorder
(posted March 4, 2021)
This study is being conducted by the Department of Graduate Studies, University of Regina.
Cody MacSorley, BSW, RSW at email@example.com
STUDY: Free Online Treatment for Anxiety in Children with ASD
Are you a parent of a child with autism between 7-14 years of age? Does your child also struggle with anxiety? They are looking for parents who are interested in delivering, with the support of a coach, an online intervention program to their child with anxiety. You are invited to complete a confidential, online questionnaire to find out if this program is appropriate for you and your child. The questionnaire will take approximately 15 minutes. This research project is Sarah Elizabeth Ivens’ PhD dissertation and is being supervised by Dr. Lynn Loutzenhiser.
To complete the questionnaire, please visit http://uregina.ca/~loutzlyn/Research.html
This project has been approved on ethical grounds by the Research Ethics Board of the University of Regina.
For more information, please feel free to contact Sarah Ivens at firstname.lastname@example.org
Sarah Elizabeth Ivens
Child and Family Research Group
University of Regina
STUDY: Investigating Depressive Symptomatology in Adolescents with ASD and ADHD
STUDY: Chatbot Engagement Focus Group
This study is conducted in partnership with CASDA (Canadian Autism Spectrum Disorders Alliance), WCHRI (Women and Children’s Health Research Institute), and KBHN (Kids Brain Health Network). They are currently in the process of running online focus groups that will inform the development and use of engagement tools in a proposed Chatbot. The Chatbot aims to improve the life outcomes of families affected by Neurodevelopmental Disorders. See the poster below for more details.
If you have any questions or would like to participate in this focus group, please direct your inquiries to the study coordinator at University of Alberta by email at email@example.com or phone (780) 492-7034.
STUDY: Life Beyond Trauma – a research program for parents of neurodiverse children
This study is led by Dr. Patrick McGrath and Dr. Elisa Kaltenbach, Centre for Research in Family Health, IWK Health Centre.
This new research project about traumatic experiences and Post Traumatic Stress Injury in parents of neurodiverse children starts now.
Facts about the survey:
- For all parents and caregivers of neurodiverse children (all ages)
- About parents’ experiences and access to care
- Takes approx. 30 min
- Highly confidential
- Chance to win $100 gift card
Facts about the trauma-focused e-health program:
- Based on the Narrative Exposure Therapy (NET)
- 12 one-on-one sessions with a trained coach
- Delivered via video calls
- Free of cost
About the researchers: They are a research team at the Centre for Research in Family Health, IWK Health Centre, Halifax. The principal investigator is Dr. Patrick McGrath; the project coordinator is Dr. Elisa Kaltenbach. The research project has been approved by the Research Ethics Board of the IWK Health Centre.
For more information on the research project, click here: www.lifebeyondtrauma.cahttps://lifebeyondtrauma.ca/
To join and learn more about the research project, contact the researchers at firstname.lastname@example.org or 1-877-341-8309 ext. 7 (toll free)
STUDY: Parents Empowering Neurodiverse Kids
This study is led by Dr. Patrick McGrath, IWK Health Centre and Dr. Lucyna Lach at McGill University.
About the study
We are offering Canadian parents of children with Neurodevelopmental disabilities an opportunity to participate in research. We offer a chance to try out a new parenting program aimed to help parents better manage challenging behavior in their children.
Who Are We Looking For?
We are seeking parents of children with intellectual disability, Autism Spectrum Disorder (ASD), Cerebral Palsy (CP), Epilepsy, Global Developmental Delay, Down Syndrome, Fetal Alcohol Spectrum Disorder (FASD), severe learning disability and other neuro-developmental disabilities to take part in a study run by the Centre for Research in Family Health at the IWK Health Centre.
Children must be ages 3-14 and have an official diagnosis of a neurodevelopmental disability. You must live in Canada to take part in this study.
For Your Time
Participating and eligible families will receive up to an $150 honorarium (cheque or gift card) in $50 installments as they complete the three study questionnaire sets.
In addition to the honorarium, eligible families may receive free coaching to help with their child’s challenging behaviours.
The Strongest Families Neurodevelopmental Program
The Strongest Families Neurodevelopmental Program has been developed to deliver evidence-based care to families in the comfort of their own homes. Our program includes 11 skill-based education sessions, weekly telephone support from trained coaches, video/audio skill demonstrations, and a Parent-to-Parent online support group. Eligible study participants will have access to some or all of these components, either during or after the study, and will be asked to provide their feedback.
The creation of our program has involved parents of children with neurodevelopmental disabilities as expert advisors in all phases of the project, ensuring program content is relevant to families like their own.
This study is led by Dr. Patrick McGrath, IWK Health Centre and Dr. Lucyna Lach at McGill University. It has received ethics approval by the IWK research ethics board.
For more information on the study, click here: Neuro-Study_PDF
Visit to join and learn more about the study:
To learn more about the Strongest Families Institute, visit: