This page provides information on research studies in which families with Autism Spectrum Disorder (ASD) might be interested in participating.

DISCLAIMER: These studies are being conducted by 3rd parties not affiliated with Autism Services.

(i.e., methods and strategies presented in the studies may differ compared to what is offered at Autism Services)

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STUDY: Chatbot Engagement Focus Group

This study is conducted in partnership with CASDA (Canadian Autism Spectrum Disorders Alliance), WCHRI (Women and Children’s Health Research Institute), and KBHN (Kids Brain Health Network). They are currently in the process of running online focus groups that will inform the development and use of engagement tools in a proposed Chatbot. The Chatbot aims to improve the life outcomes of families affected by Neurodevelopmental Disorders.  See the poster below for more details.

If you have any questions or would like to participate in this focus group, please direct your inquiries to the study coordinator at University of Alberta by email at camibot@ualberta.ca or phone (780) 492-7034.

 

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STUDY: Impact of COVID-19 School Closures on Students with Special Educational Needs

This study is conducted by Nadine Bartlett, Assistant Professor in the Faculty of Education at the University of Manitoba. She is conducting research about Canadian parents’/guardians’ perspectives on the impact of COVID-19 school closures on students with special educational needs and their parents/guardians.

 

 

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STUDY: “Quiet Spaces” in Museums

Contribute to a new study on some of the quietest spaces in museums. A UBC graduate research study is currently seeking museum visitors to voluntarily participate in an interview on their opinions of “quiet spaces” in museums. Emerging across Canada, these spaces with reduced noise and activity provide visitors an opportunity to step away from the exhibits, slow down, and take a moment to relax and regroup.

You are eligible for this study if you:
– Are an adult aged 19 or over,
– Identify as a museum visitor: You have physically visited a museum in Canada within the last three years.

If you are interested in participating or have any questions, please contact a.lucy@alumni.ubc.ca.

Please note that if you share this invitation that it is possible that you may be publicly identified with this study regardless of whether you participate.

The principal investigator for this study is Dr. David Anderson, Department of Curriculum and Pedagogy, Faculty of Education, University of British Columbia.

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STUDY: Life Beyond Trauma – a research program for parents of neurodiverse children

This study is led by Dr. Patrick McGrath and Dr. Elisa Kaltenbach, Centre for Research in Family Health, IWK Health Centre.

This new research project about traumatic experiences and Post Traumatic Stress Injury in parents of neurodiverse children starts now.

Facts about the survey:

  • For all parents and caregivers of neurodiverse children (all ages)
  • About parents’ experiences and access to care
  • Takes approx. 30 min
  • Highly confidential
  • Chance to win $100 gift card

Facts about the trauma-focused e-health program:

  • Based on the Narrative Exposure Therapy (NET)
  • 12 one-on-one sessions with a trained coach
  • Delivered via video calls
  • Free of cost

About the researchers: They are a research team at the Centre for Research in Family Health, IWK Health Centre, Halifax. The principal investigator is Dr. Patrick McGrath; the project coordinator is Dr. Elisa Kaltenbach. The research project has been approved by the Research Ethics Board of the IWK Health Centre.

For more information on the research project, click here: www.lifebeyondtrauma.cahttps://lifebeyondtrauma.ca/

To join and learn more about the research project, contact the researchers at lifebeyondtrauma@iwk.nshealth.ca or 1-877-341-8309 ext. 7 (toll free)

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STUDY: Parents Empowering Neurodiverse Kids

This study is led by Dr. Patrick McGrath, IWK Health Centre and Dr. Lucyna Lach at McGill University.

Neuro-poster

About the study

We are offering Canadian parents of children with Neurodevelopmental disabilities an opportunity to participate in research. We offer a chance to try out a new parenting program aimed to help parents better manage challenging behavior in their children.

Who Are We Looking For?

We are seeking parents of children with intellectual disability, Autism Spectrum Disorder (ASD), Cerebral Palsy (CP), Epilepsy, Global Developmental Delay, Down Syndrome, Fetal Alcohol Spectrum Disorder (FASD), severe learning disability and other neuro-developmental disabilities to take part in a study run by the Centre for Research in Family Health at the IWK Health Centre.

Children must be ages 3-14 and have an official diagnosis of a neurodevelopmental disability. You must live in Canada to take part in this study.

For Your Time

Participating and eligible families will receive up to an $150 honorarium (cheque or gift card) in $50 installments as they complete the three study questionnaire sets.

In addition to the honorarium, eligible families may receive free coaching to help with their child’s challenging behaviours.

The Strongest Families Neurodevelopmental Program

The Strongest Families Neurodevelopmental Program has been developed to deliver evidence-based care to families in the comfort of their own homes. Our program includes 11 skill-based education sessions, weekly telephone support from trained coaches, video/audio skill demonstrations, and a Parent-to-Parent online support group. Eligible study participants will have access to some or all of these components, either during or after the study, and will be asked to provide their feedback.

The creation of our program has involved parents of children with neurodevelopmental disabilities as expert advisors in all phases of the project, ensuring program content is relevant to families like their own.

This study is led by Dr. Patrick McGrath, IWK Health Centre and Dr. Lucyna Lach at McGill University. It has received ethics approval by the IWK research ethics board.

For more information on the study, click here: Neuro-Study_PDF

Visit to join and learn more about the study:

https://mystudies.ca/studies/neuro…

To learn more about the Strongest Families Institute, visit:
http://strongestfamilies.com/about-us/